This morning has been a bit crazier than usual, that included lots of important phone calls.
We first had a call from the director of the Deaf and Hard of Hearing Program (DHH).
Very informative. Marcos qualifies for the program. I just need to get one of our doctors or audiologist to make the referral.
Then we got a call from scheduling....Marcos's tube surgery is tentatively set for March 19.
This is requiring lots of coordination because since he is going under general anesthesia, we are requesting that his clogged tear duct be repaired. Again something that we've been dealing with for awhile, that he has not outgrown. Our pediatric opthamologist explained it like this:
"Basically once asleep I use a thin silver polished wire called a probe and pass it down thru the tear duct drain system to open up any partial clogs"
This will help Marcos not get teary every time he goes outdoors. No matter what the weather is like outside, he often looks like he has been crying, when he hasn't been. I've kind of been avoiding this because it's not causing any harm but if we can get it done at the same time, we will be very happy so we can enjoy the outdoors more. Our doctors have advised to have the procedure done if it had not resolved itself at 18 months. The time has come.
We've also had to reschedule his speech evaluation a couple of times due to lack of childcare for the other 2 but its now back on our calendar again for February. Another advantage of the DHH program is that they provide a home visit vs. the clinic appointment through our insurance. So we will wait and see what happens with that referral.
Though hearing tubes, speech delay, and clogged tear ducts can also be common in full term babies, its really hard for me not to think that this is a result of being born at 25 weeks.
But in reality, there are way more serious things we could be dealing with so I move on and continue to advocate and get things done.
In between all this important business I was able to capture some sweet moments....Sofia and Carlos kissing.
With both her brothers!
Somehow all these calls are helping ease the frustration I feel when I can't get anything done....besides taking care of all the kids.
Yay for nap time...wait...did I just hear Sofia say "hiiiii" through the monitor?!